
@article{ref1,
title="Assessing informal caregivers' experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale",
journal="European journal of cancer care",
year="2008",
author="Persson, C. and Wennman‐larsen, A. and Sundin, K. and Gustavsson, P.",
volume="17",
number="2",
pages="189-199",
abstract="With the aim to evaluate the Swedish version of the Caregiver Reaction Assessment Scale (CRA), informal caregivers (n = 209) to individuals with a malignant disease, dementia or a physical impairment were recruited. The CRA was developed in the USA and is a self-rating questionnaire consisting of five subscales, measuring family members' reactions to the experience of caring for a relative with mental or physical illnesses. Data were analysed using psychometric and qualitative methods. Findings indicated good internal consistency, and a factor analysis confirmed the structure with five subscales; however, an overlap of items between the subscales was found. A content analysis of respondents' comments indicated that there were problems due to presuppositions inherent in the questions and with the meaning of words. Problems regarding inclusion/exclusion aspects in some concepts were also found. Two aspects of caregiver reactions were found to be missing or only partly covered: worrying and positive experiences. Results from this study suggest that the Swedish version is useful for assessment of caregiver reactions but needs further refinement.<p />",
language="",
issn="0961-5423",
doi="10.1111/j.1365-2354.2007.00833.x",
url="http://dx.doi.org/10.1111/j.1365-2354.2007.00833.x"
}