@article{ref1,
title="Socioeconomic determinants associated with willingness to participate in medical research among a diverse population",
journal="Contemporary clinical trials",
year="2012",
author="Svensson, Katherine and Ramírez, Olivia F. and Peres, Frederico and Barnett, Mallory and Claudio, Luz",
volume="33",
number="6",
pages="1197-1205",
abstract="INTRODUCTION: Although it is federally-mandated that racial/ethnic minorities be included in research studies, recruiting diverse populations remains a challenge. This is particularly difficult when research involves children. The purpose of this study was to assess attitudes and beliefs toward medical research among a racially and socioeconomically diverse population of parents of school children. METHODS: A cross-sectional parent-report survey was conducted in New York City public elementary schools using stratified random selection to obtain a diverse population. Fear of medical research and likelihood to participate in medical research were assessed using a validated questionnaire. Differences in fear/likelihood to participate in research across race/ethnicity and socioeconomic characteristics were evaluated. RESULTS: In general, parents were afraid of their child &quot;being treated as a guinea pig&quot;, but were willing to allow their child to participate in research if asked by their own doctor. Factors associated with a lower score on fear toward research were; primary language other than English (OR=0.59), access to an interpreter (OR=0.73) and access to medical service within a day (OR=0.51). Latinos had the highest fear score (OR=1.87) compared to Whites. Asians were the ethnic group most likely to participate in research (OR=1.71). Low education level (OR=2.18) and public health insurance (OR=1.37) were associated with a higher score for likelihood of allowing one's child to participate in medical research. CONCLUSION: Minority parents reported more fear allowing their children to participate in medical research, but were as likely to consent their children's participation, especially if asked by their own physician.<p /> <p>Language: en</p>",
language="en",
issn="1551-7144",
doi="10.1016/j.cct.2012.07.014",
url="http://dx.doi.org/10.1016/j.cct.2012.07.014"
}