@article{ref1,
title="Stigmatization predicts psychological adjustment and quality of life in children and adolescents with a facial difference",
journal="Journal of pediatric psychology",
year="2013",
author="Masnari, Ornella and Schiestl, Clemens and Rössler, Jochen and Gütlein, Stefanie K. and Neuhaus, Kathrin and Weibel, Lisa and Meuli, Martin and Landolt, Markus A.",
volume="38",
number="2",
pages="162-172",
abstract="OBJECTIVES: This cross-sectional study assessed psychological adjustment and health-related quality of life (HRQOL) in children and adolescents with congenital or acquired facial differences and identified potential predictors of adjustment. METHODS: Data were obtained from 88 children, ages 9 months to 16 years, by means of parent questionnaires (n = 86) and standardized interviews with children ≥7 years old (n = 31). Evaluation measures included the Child Behavior Checklist (CBCL), KIDSCREEN-27, TNO-AZL Preschool Quality of Life Questionnaire (TAPQOL), and Perceived Stigmatization Questionnaire. RESULTS: Psychological adjustment, as measured by the CBCL, was within norms. Parent-reported HRQOL was good in preschool children. Parent- and self-reported HRQOL of participants 7-16 years old was impaired in several dimensions, including psychological well-being. Psychological adjustment (especially internalizing behavior problems) and HRQOL were predicted primarily by perceived stigmatization. CONCLUSIONS: Identification of stigma experiences and appropriate support may be crucial to enhancing psychological adjustment and quality of life in children with facial disfigurement.<p /> <p>Language: en</p>",
language="en",
issn="0146-8693",
doi="10.1093/jpepsy/jss106",
url="http://dx.doi.org/10.1093/jpepsy/jss106"
}