
@article{ref1,
title="Improving the consent process for neuroepidemiologic research in resource-poor settings",
journal="Neurology",
year="2014",
author="Meta, Judith and Nasuwa, Fortunata and Mwendo, Emanuel and Reyburn, Hugh and Bower, James H.",
volume="82",
number="10",
pages="895-897",
abstract="Participation rates in epidemiologic studies in African communities are historically high. We recently performed a pilot prevalence study for neurologic morbidity in Mungushi, Tanzania, where the participation rate was 645/657 subjects (98.2%).(1) We questioned whether this high rate was due to a sincere motivation to participate or a fear of refusal of participation. As Western investigators are increasingly performing neuroepidemiologic work in Africa, it is imperative to distinguish between the 2 explanations. Investigators need to tailor the consent process to the local community's needs, and be sensitive to the motivation of the participants whose culture may differ from their own.<p /> <p>Language: en</p>",
language="en",
issn="0028-3878",
doi="10.1212/WNL.0000000000000184",
url="http://dx.doi.org/10.1212/WNL.0000000000000184"
}