@article{ref1,
title="Health-related quality of life in children and youth with acquired brain injury: two years after injury",
journal="European journal of paediatric neurology",
year="2015",
author="Ilmer, Esther C. and Lambregts, Suzanne A. M. and Berger, Monique A. M. and de Kloet, Arend J. and Hilberink, Sander R. and Roebroeck, Marij E.",
volume="20",
number="1",
pages="131-139",
abstract="OBJECTIVE: To determine health-related quality of life (HRQoL) in children and youth with acquired brain injury (ABI) two years post-injury and explore associated factors. <br><br>DESIGN: Cross-sectional. SUBJECTS: Children and youth (n = 72; aged 6-22 years) with mild to severe ABI (87% mild). <br><br>METHODS: The primary outcome measures self-reported and parent-reported HRQoL were assessed with the Paediatric Quality of Life Inventory (PedsQL) and compared with age-appropriate reference values of the Dutch population. Spearman correlation coefficients (Rs) were used to explore relationships between HRQoL and sociodemographic and ABI characteristics, severity of impairments and presence of post-injury problems. <br><br>RESULTS: Children and youth with ABI and the reference population had similar self-reported HRQoL. However, as reported by parents, children with ABI aged 6-7 years and youth aged 13-18 years had poorer HRQoL regarding psychosocial health. Children's post-injury cognitive, behavioural and social problems were moderately associated with poorer HRQoL, especially psychosocial health (Rs ≥ 0.40). Severity nor type of injury were associated with children's HRQoL. <br><br>CONCLUSION: Two years post-injury, in children and youth with mild to severe ABI, reported HRQoL is similar to that in the general population, whereas parents reported less favourable outcomes. Post-injury cognitive, behavioural and social problems require ongoing attention during long-term follow-up.<p /> <p>Language: en</p>",
language="en",
issn="1090-3798",
doi="10.1016/j.ejpn.2015.09.003",
url="http://dx.doi.org/10.1016/j.ejpn.2015.09.003"
}