@article{ref1,
title="Safety-related concerns of parents for children with disabilities and chronic conditions",
journal="Journal of developmental and behavioral pediatrics",
year="2016",
author="Olsen, Lise L. and Kruse, Sami and Miller, Anton R. and Brussoni, Mariana J.",
volume="37",
number="2",
pages="121-131",
abstract="OBJECTIVE: The aim of this study was to explore the safety-related concerns of parents of children with a variety of disabilities and chronic conditions. We sought to examine concerns common to parents as they related to their children's delayed development, behavioral difficulties, and chronic conditions. <br><br>METHOD: A qualitative approach guided by grounded theory was used. Participants included parents of children between 1 and 5 years with a disability or chronic condition who resided in British Columbia, Canada. Data were collected using in-depth in-person interviews and analysis conducted using constant comparative methods. <br><br>RESULTS: Three themes were identified that reflected parental safety concerns. These included concerns about: (1) Child's level of understanding about danger; (2) Child interactions with physical environment (concerns about child movement, concerns about ingestions); (3) Child interactions with social environment. Difficult-to-manage behaviors and cognitive limitations exacerbated parents' safety concerns. Parents were found to share safety concerns about movement and ingestions across a range of types of child health conditions. <br><br>CONCLUSION: For themes of child movement and child ingestions, findings supported the utility of a noncategorical approach for the design of injury prevention strategies for these types of concerns. Parent concerns about child lack of understanding about risk and social safety concerns were linked to a smaller number of conditions and supported a more tailored approach. Flexible approaches may be needed that can offer both generic and specific information and to meet the needs of parents and clinicians.<p /> <p>Language: en</p>",
language="en",
issn="0196-206X",
doi="10.1097/DBP.0000000000000256",
url="http://dx.doi.org/10.1097/DBP.0000000000000256"
}