@article{ref1,
title="Perceived participation, experiences from persons with spinal cord injury in their transition period from hospital to home",
journal="International journal of rehabilitation research",
year="2010",
author="Van de Velde, Dominique",
volume="33",
number="4",
pages="346-355",
abstract="It is suggested that participation should be achieved at the end of the rehabilitation process. However, there is a lack of consensus on the definition, the conceptualization and the measurement of participation. This study aims to add to the existing body of knowledge of participation by exploring the &quot;person perceived participation&quot; in individuals with spinal cord injury (SCI). On the basis of the &quot;grounded theory&quot; approach, in-depth, semistructured interviews were conducted with 11 SCI patients from a rehabilitation cohort in their transition period from hospital to home, to gain an insider perspective on the concept of participation. <br><br>RESULTS identified three different categories of participation: social participation, occupational participation and socio-occupational participation. The participants conceptualize participation as a set of values, including experiencing free choice to perform activities, performing according to the person's identity, experiencing personal growth, belonging by experiencing trust and security, feeling validated, having a sense of control, experiencing a sense of importance and finding equal identities. In conclusion, from a client perspective, participation is a complex, multidimensional construct and can be considered as a dyad between the individual's social interactions and his specific activities performed. Participation was not experienced by the SCI patients as an objective way of performing activities within a societal context or as frequencies of activities performed, but rather as an internal process of negotiation that seemed to be based on balancing personal and societal values.<p /><p>Language: en</p>",
language="en",
issn="0342-5282",
doi="10.1097/MRR.0b013e32833cdf2a",
url="http://dx.doi.org/10.1097/MRR.0b013e32833cdf2a"
}