@article{ref1,
title="Quality of life after brain injury (QOLIBRI): Italian validation of the proxy version",
journal="Internal and emergency medicine",
year="2016",
author="Formisano, Rita and Silvestro, Daniela and Azicnuda, Eva and Longo, Eloise and Barba, Carmen and Rigon, Jessica and D'Ippolito, Mariagrazia and Giustini, Marco and Bivona, Umberto",
volume="12",
number="2",
pages="187-198",
abstract="To validate the proxy version of the Quality of Life after Brain Injury (QOLIBRI) questionnaire to utilize caregivers for comparison and to evaluate the correspondence between patients' self-perceived and caregivers' perception of patients' Health-Related Quality of Life (HRQoL). Ninety-two patients with severe TBI and their main caregivers were enrolled. Patients' and caregivers' HRQoL was assessed by the Patient-QOLIBRI (Pt-QOLIBRI) and the Proxy-QOLIBRI (Pro-QOLIBRI), respectively. The Pro-QOLIBRI is a modified version of the QOLIBRI to investigate caregivers' perception of patients' HRQoL (Pro-QOLIBRIpatient-centered), and their degree of satisfaction and botheredness (Pro-QOLIBRIcaregiver centered). The patients' disability and their social reintegration was investigated by means of Glasgow Outcome Scale Extended and Community Integration Questionnaire. Pro-QOLIBRI has good internal consistency and homogeneity. There was also positive correlation between the level of satisfaction measured by Pro-QOLIBRI but not by Pt-QOLIBRI, and the disability severity and social integration of the patients. The comparison between the Pt-QOLIBRI and Pro-QOLIBRI confirmed the usefulness of the Pro-QOLIBRI, especially the caregiver-centered version, to predict the social reintegration of survivors. To our knowledge this is the first study that correlates the HRQoL of survivors, as self-perceived and as perceived by the caregivers with social reintegration.<p /> <p>Language: en</p>",
language="en",
issn="1828-0447",
doi="10.1007/s11739-016-1536-1",
url="http://dx.doi.org/10.1007/s11739-016-1536-1"
}