@article{ref1,
title="After a child's acquired brain injury (ABI): an ethnographic study of being a parent",
journal="Journal of pediatric rehabilitation medicine",
year="2016",
author="Rashid, Marghalara and Goez, Helly R. and Caine, Vera and Yager, Jerome Y. and Joyce, Anthony S. and Newton, Amanda S.",
volume="9",
number="4",
pages="303-313",
abstract="PURPOSE: To explore the meanings associated with being a parent of a child with an aquired brain injury (ABI). <br><br>METHODS: An ethnographic study was conducted with parents of children aged 3 to 10 years who had acquired a severe brain injury. <br><br>PURPOSEful sampling was used to recruit parents from the Glenrose Rehabilitation Hospital in Edmonton, Alberta. Data collection involved participant observation, fieldwork and semi-structured interviews. Field notes and interviews transcriptions were analysed using a thematic analysis framework and informed by symbolic interactionism theory. <br><br>RESULTS: Six parent dyads (mothers and fathers) and 4 mothers participated in the study.Parents' meanings of 'parenting' a child with severe brain injury were shaped by the injury, wide range of familial dynamics, and interactions. Six main themes related to parental meanings emerged from our data: (1) Getting 'back to normal'; (2) Relying on a support system; (3) Worrying something bad may happen after the injury; (4) Going through a range of emotions following the injury; (5) Changing family dynamics after the injury; and (6) Ongoing performativity. <br><br>CONCLUSION: Parents' meanings of 'parenting' a child are extensively impacted by their child's functioning after the ABI. Having a greater appreciation of these experiences may be beneficial for medical professionals.<p /> <p>Language: en</p>",
language="en",
issn="1874-5393",
doi="10.3233/PRM-160403",
url="http://dx.doi.org/10.3233/PRM-160403"
}