@article{ref1,
title="Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: a Norwegian longitudinal study",
journal="NeuroRehabilitation",
year="2016",
author="Manskow, Unn Sollid and Friborg, Oddgeir and Røe, Cecilie and Braine, Mary E. and Damsgård, Elin and Anke, Audny",
volume="40",
number="2",
pages="211-222",
abstract="OBJECTIVE: To assess burden and life satisfaction in family members of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine if change in burden can be predicted by family member and patient demographics, patient's functional status, family members social network or level of burden at 1 year. <br><br>METHODS: Prospective national multicenter study. Self-report from family members, patient data collected from a national cohort study on patients with sTBI. 80 family members participated. MAIN OUTCOME MEASURE: The Caregiver Burden Scale (CBS), life satisfaction. <br><br>RESULTS: Total burden increased between years 1 and 2 post-injury (P = 0.04). Thirty percent of the family members reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR = 4.35, P < 0.05). Life Satisfaction was lower at the 2 year follow-up than at 1 year (p = 0.03). <br><br>CONCLUSIONS: The results demonstrate a need for long-term follow-up of patients and family members that focuses on professional support to relieve burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.<p /> <p>Language: en</p>",
language="en",
issn="1053-8135",
doi="10.3233/NRE-161406",
url="http://dx.doi.org/10.3233/NRE-161406"
}