@article{ref1,
title="Patient-proxy agreement on the health-related quality of life one year after traumatic brain injury",
journal="Archives of physical medicine and rehabilitation",
year="2017",
author="Hwang, Hei-Fen and Chen, Chih-Yi and Lin, Mau-Roung",
volume="98",
number="12",
pages="2540-2547",
abstract="OBJECTIVE: To examine the level of agreement between patients and their proxies on a measure of health-related quality of life (HRQL) 1 year after traumatic brain injury (TBI). <br><br>DESIGN: A cross-sectional study. PARTICIPANTS: and Setting: Eighty-eighty patients with TBI identified from discharge records of four hospitals in Taiwan and 88 family members or friends who could answer questions regarding the patient's health and HRQL 1 year after the injury. MAIN OUTCOME MEASURES: A health profile of the brief Taiwanese version of the World Health Organization Quality of Life (WHOQOL-BREF) and two health utility measures of the time tradeoff (TTO) and standard gamble (SG). <br><br>RESULTS: Compared to proxy responses, patients provided higher ratings of the WHOQOL-BREF's domains and lower ratings of the TTO and SG. Intraclass correlation coefficients between patient and proxy ratings varied among the four WHOQOL-BREF's domains, in which levels of agreement were moderate or good for physical capacity (0.69) and low for psychological well-being (0.45), social relationships (0.24), and the environment (0.32). Levels of agreement were extremely low for the TTO (0.0) and SG (0.10). A profile analysis showed that patients' ratings on the WHOQOL-BREF, on average, were significantly greater than those of their proxies (with a mean difference of 3.07), with a similar distribution of scatter responses (with a mean difference of 0.002) and shape agreement (0.57). Greater variations in the patient-proxy level of agreement appeared in patients who were younger and had more-severe injuries, and also with parent and child proxies. <br><br>CONCLUSIONS: To assess the HRQL of patients with a TBI, the level of patient-proxy agreement was adequate for the physical domain but was lower for the social and environmental domains, and the agreement was very low for the TTO and SG. Furthermore, a patient's age and injury severity, and patient-proxy' relationship may affect the agreement.<br><br>Copyright © 2017 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.<p /> <p>Language: en</p>",
language="en",
issn="0003-9993",
doi="10.1016/j.apmr.2017.05.013",
url="http://dx.doi.org/10.1016/j.apmr.2017.05.013"
}