@article{ref1,
title="A study of burden of care and its correlates among family members supporting relatives and loved ones with traumatic spinal cord injuries",
journal="Clinical rehabilitation",
year="2017",
author="Castellano-Tejedor, Carmina and Lusilla-Palacios, Pilar",
volume="31",
number="7",
pages="948-956",
abstract="OBJECTIVE: To understand and describe in a sample of caregivers of persons with spinal cord injury, their burden of care, resilience and life satisfaction and to explore the relationship between these variables. <br><br>DESIGN: Cross-sectional design. SETTING: One Spinal Cord Injury Acute Inpatient Unit from a general hospital. SUBJECTS: Seventy-five relatives of persons with spinal cord injuries (84% women) with a mean age of 48.55 ( SD = 12.55) years. INTERVENTIONS: None. MEASURES: Demographics (neurological loss and severity according to the American Spinal Injury Association criteria), the Zarit Burden Interview, the Resilience Scale and the Life Satisfaction Checklist. <br><br>RESULTS: All caregivers experienced feelings of different intensities of burden (52% mild-to-moderate, 43% moderate-to-severe and 5% severe), and none of them expressed little or no burden at the assessment moment. Caregivers' main worries were &quot;dependence&quot; and &quot;the future of the injured.&quot; Resilience was medium-to-high (mean = 141.93, SD = 23.44) for the whole sample with just a minority of them revealing low (15%) or very low resilience (7%). The highest scores were obtained in relation to &quot;caregivers' independence&quot; and &quot;meaning of their lives.&quot; Life satisfaction scores were medium-to-high (mean = 36.6, SD = 6). These scores were not related to demographics or the severity of the injury. Zarit Burden Interview scores were negatively correlated to Resilience Scale ( r = -.370, P = .001) and Life Satisfaction Checklist scores ( r = -.412, P < .001). <br><br>CONCLUSION: More resilient and satisfied caregivers experienced lower burden. Burden is moderate-to-high and mainly related to uncertainty about the future, caregivers' insecurity with caregiving and dependence of the injured.<p /> <p>Language: en</p>",
language="en",
issn="0269-2155",
doi="10.1177/0269215517709330",
url="http://dx.doi.org/10.1177/0269215517709330"
}