@article{ref1,
title="Leveraging health information exchange to construct a registry for traumatic brain injury, spinal cord injury and stroke in Indiana",
journal="AMIA annual symposium proceedings",
year="2017",
author="Rahurkar, Saurabh and McFarlane, Timothy D. and Wang, Jane and Hoover, Sarah and Hammond, Flora and Kean, Jacob and Dixon, Brian E.",
volume="2017",
number="",
pages="1440-1449",
abstract="Traumatic brain injury (TBI), spinal cord injury (SCI) and stroke are conditions of interest to public health as they can result in long-term outcomes and disabilities. Specialized registries can facilitate public health surveillance, however only 4% of hospitals in the United States actively engage in electronic reporting to these registries. We leveraged electronic claims and clinical data from a health information exchange to create a statewide TBI/SCI/Stroke registry to facilitate the study of long-term outcomes and health services utilization. The registry contains 109,943 TBI patients, 9,027 SCI patients and 117,084 stroke patients with a mean of 3 years of follow-up data after injury. Additionally, the registry contains data on individual patient encounters, prescriptions and clinical variables. The high-dimensional data with large sample sizes may present a valuable informatics resource for injury research as well as public health surveillance.<p /> <p>Language: en</p>",
language="en",
issn="1559-4076",
doi="",
url="http://dx.doi.org/"
}