@article{ref1,
title="Development of an evidence-based practice framework to guide decision making support for people with cognitive impairment due to acquired brain injury or intellectual disability",
journal="Disability and rehabilitation",
year="2018",
author="Douglas, Jacinta and Bigby, Christine",
volume="ePub",
number="ePub",
pages="1-8",
abstract="PURPOSE: At least 5% of people in Australia and the USA have cognitive impairment and require support for decision-making. This paper details a research program whereby an evidence-based Support for Decision Making Practice Framework has been developed for those who support people with cognitive disabilities to make their own decisions across life domains. <br><br>METHODS: The La Trobe framework was derived from a research program modeled on the Medical Research Council four-phase approach to development and evaluation of complex interventions. We completed phase one (development) by: (1) systematically reviewing peer-reviewed literature; and (2) undertaking qualitative exploration of the experience of support for decision-making from the perspectives of people with cognitive disabilities and their supporters through seven grounded theory studies. <br><br>RESULTS of phase two (feasibility and piloting) involving direct support workers and health professionals supported phase three (evaluation) and four (implementation), currently underway. <br><br>RESULTS: The framework outlines the steps, principles, and strategies involved in support for decision-making. It focuses on understanding the will and preferences of people with cognitive disabilities and guides those who provide support including families, support workers, guardians, and health professionals. <br><br>CONCLUSIONS: This framework applies across diverse contemporary contexts and is the first evidence-based guide to support for decision-making. Implications for Rehabilitation Support for decision-making is essential to maximise the participation of people with cognitive disability in decisions about their lives. Research has shown that support for decision making is a complex multifaceted process comprising multiple overlapping steps, delivered through individually tailored strategies and informed by practice principles. The La Trobe practice framework provides an evidence-based guide for engaging in effective support for decision-making with people with cognitive disability.<p /> <p>Language: en</p>",
language="en",
issn="0963-8288",
doi="10.1080/09638288.2018.1498546",
url="http://dx.doi.org/10.1080/09638288.2018.1498546"
}