@article{ref1,
title="The information gap for children and young people with acquired brain injury",
journal="Developmental neurorehabilitation",
year="2019",
author="Dunford, Carolyn and Cobbold, Clair and Ray, Ian and Wales, Lorna",
volume="ePub",
number="ePub",
pages="1-8",
abstract="STATEMENT OF PURPOSE: This study explored the information requirements of children/youth with an acquired brain injury. <br><br>METHODS: An online survey (n = 16), focus group (n = 5) and in-depth semi-structured interviews (n = 3) elicited the views of 24 children/youth with ABI. A priori thematic coding was used to analyze the data. <br><br>RESULTS: Five themes emerged: stage and age, school, friendship and peers, delivery methods and information content. The desired information changes over time depending on age and time since the injury. Children/youth want their friends and teachers to access information on brain injury. Children/youth want information delivered through a range of channels, including videos (featuring genuine case studies), apps and board games. Children/youth wanted information specific to their injury, information on brain injury more generally, and practical strategies for overcoming problems. <br><br>CONCLUSIONS: Children/youth with ABI were able to express views about their information needs, which change over time and include a range of channels.<p /> <p>Language: en</p>",
language="en",
issn="1751-8423",
doi="10.1080/17518423.2018.1564394",
url="http://dx.doi.org/10.1080/17518423.2018.1564394"
}