@article{ref1,
title="'I can hardly breathe': exploring the parental experience of having a child with a functional disorder",
journal="Journal of child health care",
year="2019",
author="Hulgaard, Ditte Roth and Rask, Charlotte Ulrikka and Risør, Mette Bech and Dehlholm, Gitte",
volume="ePub",
number="ePub",
pages="1367493519864745-1367493519864745",
abstract="Functional disorders in children and adolescents are common. Still, little is known about parents' experience of having a child with a functional disorder. The aim of this qualitative interview study was to explore challenges encountered by parents caring for a child undergoing treatment for functional disorder. Sixteen parents to children with functional disorders were interviewed when their child was referred from a paediatric department for further specialized treatment with family therapy in child and adolescent mental health services. Analysis identified three themes, reflecting the parental experiences: parents in limbo, which described how limited knowledge about functional disorders among professionals in non-specialized settings influenced parental roles; a counterintuitive kind of caring, describing parental struggles with adhering to treatment recommendations for functional disorders; and challenges to parental identity, describing parental emotional challenges. These challenges may bar the acceptance of psychological treatment approaches in families with a child with functional disorders.<p /> <p>Language: en</p>",
language="en",
issn="1367-4935",
doi="10.1177/1367493519864745",
url="http://dx.doi.org/10.1177/1367493519864745"
}