
@article{ref1,
title="Exploring participation after paediatric acquired brain injury",
journal="Journal of child health care",
year="2020",
author="Keetley, Rachel and Westwater-Wood, Sarah and Manning, Joseph C.",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="This study aimed to explore the levels of participation in a UK sample of children and young people (CYP) with an acquired brain injury (ABI) at home, school and in the community through a cross-sectional study. The Child and Family Follow-Up Survey was distributed to parents/carers of 134 CYP with ABI (CYP-ABI) who received neuro-rehabilitation from 2014 to 2016. Access and recruitment were problematic resulting in a low response rate (4%). Widespread restrictions in participation were reported by four of the five respondents with community-structured events/activities and educational activities being the most restricted. Factors impacting on participation were cognitive-based and movement skills, family stress and lack of support/encouragement in the community. Study results provide information pertaining to the feasibility of undertaking research with this population while also highlighting the restrictions to participation experienced by CYP-ABI more than two years after injury.<p /> <p>Language: en</p>",
language="en",
issn="1367-4935",
doi="10.1177/1367493520905673",
url="http://dx.doi.org/10.1177/1367493520905673"
}