@article{ref1,
title="Electronic linkage and interrogation of administrative health, social care, and criminal justice datasets: feasibility concerning process and content",
journal="Informatics for health and social care",
year="2020",
author="Higgins, Cassie and Matthews, Keith",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="The objective was to test the feasibility of a novel model of electronic linkage and interrogation of large, sensitive, administrative datasets derived from health care, social care, and criminal justice.   Participants comprised all individuals having completed suicide or drug-related death in Tayside between 2009 and 2014. Data were hosted, linked, and pseudo-anonymized by a Trusted Third Party and were interrogated via secure access to the HIC Scottish Government-certified Safe Haven. Several barriers were encountered concerning data access, with all but one issue (obtaining criminal justice data) ultimately soluble. However, each barrier led to a substantial delay in either obtaining the required approvals or in receiving the specified data extracts.   Generally, data coverage was good but data quality was poor, with almost a fifth of the data fields (17%) being less than 10% complete. The feasibility of this novel approach was demonstrated. Critically, this was achieved because of the central involvement of a Trusted Third Party and the use of a Government-certified Safe Haven. Future studies using a similar model of data acquisition and analysis should consider the potential delays resulting from organizations' lack of familiarity with their data-sharing protocols and procedures.<p /> <p>Language: en</p>",
language="en",
issn="1753-8157",
doi="10.1080/17538157.2020.1793346",
url="http://dx.doi.org/10.1080/17538157.2020.1793346"
}