@article{ref1,
title="Perspectives on mental health among patients receiving dialysis",
journal="Nephrology, dialysis, transplantation",
year="2020",
author="Nataatmadja, Melissa and Evangelidis, Nicole and Manera, Karine E. and Cho, Yeoungjee and Johnson, David W. and Craig, Jonathan C. and Baumgart, Amanda and Hanson, Camilla S. and Shen, Jenny and Guha, Chandana and Scholes-Robertson, Nicole and Tong, Allison",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="BACKGROUND: Diminished mental health is associated with increased morbidity and mortality and may contribute to loss of independence and motivation in patients  receiving dialysis and their caregivers. Increased understanding of the patient  perspective on triggers, impacts and strategies for managing mental health may  inform ways to address mental health conditions in this population. <br><br>METHODS: A  secondary thematic analysis was undertaken using data from the Standardized Outcomes  in Nephrology (SONG)-Hemodialysis and SONG-Peritoneal Dialysis projects. We  extracted and analysed data on the perceived causes, meaning, impact and management  of mental health in patients receiving dialysis from 26 focus groups (in six  countries), multinational Delphi surveys and consensus workshops. <br><br>RESULTS: A total  of 644 patients and caregivers participated. We identified five themes: bound to  dialysis (forced into isolation, enslaved to a machine, stress of relentless  planning and grieving the loss of a normal life), underrecognized and ignored  (missed by health practitioners, need for mental health support), an uncertain  future (dreading complications, coming to terms with mortality), developing  self-reliance (vulnerability in being solely responsible for dialysis, sustaining  motivation for dialysis, necessity for self-vigilance and taking charge to regulate  emotions) and responding to a lifestyle overhaul (guilt of burdening family,  controlling symptoms for overall mental wellness, protecting independence and trying  to feel grateful). <br><br>CONCLUSIONS: Patients receiving dialysis and their caregivers  endure mental and emotional distress attributed to the burden of dialysis, lifestyle  restrictions, the constant threat of death and symptom burden, which can impair  motivation for self-management. Increased attention to monitoring and management of  mental health in this population is needed.<p /> <p>Language: en</p>",
language="en",
issn="0931-0509",
doi="10.1093/ndt/gfaa346",
url="http://dx.doi.org/10.1093/ndt/gfaa346"
}