@article{ref1,
title="Spinal cord injury/disorder function, affiliate stigma, and caregiver burden in Turkey",
journal="PM & R : the journal of injury, function, and rehabilitation",
year="2021",
author="Pugh, Mickeal Jr and Perrin, Paul B. and Kuzu, Duygu",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="INTRODUCTION: How spinal cord injury and disorder (SCI/D) function, caregiver affiliate stigma, and caregiver depression and burden are associated has not been  adequately studied. In Turkey, a region with a developing healthcare infrastructure,  SCI/D caregivers may have a higher responsibility of care given limited resources  and may experience greater psychological distress associated with caregiving than in  more developed healthcare systems. <br><br>OBJECTIVE: To examine whether SCI/D function,  caregiver affiliate stigma, and caregiver burden and depression in Turkey are  associated with each other. <br><br>DESIGN: Cross-sectional survey design. SETTING:  Participants were recruited from the Turkish Spinal Cord Injury Foundation and from  the SCI/D service at Istanbul Physical Rehabilitation Hospital. PARTICIPANTS: 82  SCI/D caregivers in Turkey. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES:  Barthel Index, Affiliate Stigma Scale, Zarit Burden Interview, and Patient Health  Questionnaire-9. <br><br>RESULTS: In an initial path model using bootstrapping, SCI/D  function did not predict affiliate stigma, and once this path was trimmed, a final  path model suggested that SCI/D function and affiliate stigma predicted caregiver  burden, which in turn predicted caregiver depression. Burden partially mediated the  effects of both SCI/D function and affiliate stigma on caregiver depression. All  paths in the final model were statistically significant, and the fit indices  suggested good fit. <br><br>CONCLUSIONS: Because affiliate SCI/D function and stigma exerted  a cascade of statistical effects across caregiver burden and depression,  interventions should be developed and tested to help caregivers cope with low SCI/D  function and combat affiliate stigma, preventing it from exerting harmful effects. Previously developed caregiver interventions should be translated and culturally  adapted for a Turkish context, given that the burden and depression outcomes these  interventions target are highly relevant for Turkish SCI/D caregivers. This article  is protected by copyright. All rights reserved.<p /> <p>Language: en</p>",
language="en",
issn="1934-1482",
doi="10.1002/pmrj.12548",
url="http://dx.doi.org/10.1002/pmrj.12548"
}