
@article{ref1,
title="Patients' experiences and wellbeing after injury: a focus group study",
journal="PLoS one",
year="2021",
author="de Vries, Jolanda and Gosens, Taco and Traa, Marjan Johanna and Den Oudsten, Brenda Leontine and Visser, Eva",
volume="16",
number="1",
pages="e0245198-e0245198",
abstract="BACKGROUND: Injury can have physical, psychological and social consequences. It is unclear which factors have an impact on patients' wellbeing after injury. This study  aimed to explore, using focus groups, patients' experiences and wellbeing after  injury and which factors, impede or facilitate patients' wellbeing. <br><br>METHODS: Trauma  patients, treated in the shock room of the Elisabeth-TweeSteden Hospital, the  Netherlands, participated in focus groups. Purposive sampling was used. Exclusion  criteria were younger than 18 years old, severe traumatic brain injury, dementia,  and insufficient knowledge of the Dutch language. The interviews were recorded,  transcribed verbatim, and analyzed using coding technique open, axial, and selective  coding, based on phenomenological approach. <br><br>RESULTS: Six focus groups (3 to 7  participants) were held before data saturation was reached. In total, 134 patients  were invited, 28 (21%) agreed to participate (Median age: 59.5; min. 18 -max. 84). Main reasons to decline were fear that the discussion would be too confronting or  patients experienced no problems regarding the trauma or treatment. Participants  experienced difficulties on physical (no recovery to pre-trauma level),  psychological (fear of dying or for permanent limitations, symptoms of posttraumatic  stress disorder, cognitive dysfunction), social (impact on relatives and social  support) wellbeing. These are impeding factors for recovery. However, good  communication, especially clarity about the injury and expectations concerning  recovery and future perspectives could help patients in surrendering to care. Patients felt less helpless when they knew what to expect. <br><br>CONCLUSIONS: This is the  first study that explored patients' experiences and wellbeing after injury. Patients  reported that their injury had an impact on their physical, psychological, and  social wellbeing up to 12 months after injury. Professionals with the knowledge of  consequences after injury could improve their anticipation on patients' need.<p /> <p>Language: en</p>",
language="en",
issn="1932-6203",
doi="10.1371/journal.pone.0245198",
url="http://dx.doi.org/10.1371/journal.pone.0245198"
}