@article{ref1,
title="Parent-reported family impact in children and young adults with acquired brain injury in the outpatient rehabilitation setting",
journal="Brain injury",
year="2021",
author="Allonsius, F. and de Kloet, A. J. and van Markus-Doornbosch, F. and Meesters, J. J. L. and Kromme, C. H. and Vliet Vlieland, T. P. M. and Van Der Holst, M.",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="PURPOSE: To increase knowledge/awareness on family impact (FI) after acquired brain injury (ABI) in rehabilitation settings, it is essential to investigate the associations between patient-functioning and impact on families. This has been explored in hospital-based cohorts, but not in rehabilitation settings.<br><br>METHODS: A cross-sectional, multi-center study among parents of children/young adults (aged 57-<24 years) with ABI referred to rehabilitation was performed. Patient/injury/family-characteristics were noted, and parents completed the PedsQL™Family-Impact-Module and PedsQL™generic-core-4.0 to assess FI and health-related quality of life (HRQoL). Univariate- and multivariable-regression analyses were performed to investigate associations between HRQoL/patient/injury/family-related factors and FI.<br><br>RESULTS: 246 families participated; patients' median age was 14 year (IQR 117-<16), 65 had non-traumatic-brain-injury (nTBI) (26%), 127 were female. FI was found to be considerable (median FIM-score 71.9, IQR:60-85). Especially referral to rehabilitation >6 months after onset, diminished patients' mental/emotional health and HRQoL (child/family factors), and premorbid problems were associated with higher FI.<br><br>CONCLUSIONS: In this rehabilitation cohort, pediatric ABI caused considerably higher FI than in hospital-based studies with referral to rehabilitation >6 months, diminished child/family factors and presence of premorbid problems increasing FI. Assessing and monitoring FI and its associated factors enables professionals to individualize treatment, psychoeducation, support and follow-up.<p /> <p>Language: en</p>",
language="en",
issn="0269-9052",
doi="10.1080/02699052.2021.1891287",
url="http://dx.doi.org/10.1080/02699052.2021.1891287"
}