@article{ref1,
title="Well-being after severe brain injury: what counts as good recovery?",
journal="Cambridge quarterly of healthcare ethics",
year="2021",
author="Graham, Mackenzie and Naci, Lorina",
volume="30",
number="4",
pages="613-622",
abstract="Disorders of consciousness (DOC) continue to profoundly challenge both families and medical professionals. Once a brain-injured patient has been stabilized, questions turn to the prospect of recovery. However, what &quot;recovery&quot; means in the context of patients with prolonged DOC is not always clear. Failure to recognize potential differences of interpretation-and the assumptions about the relationship between health and well-being that underlie these differences-can inhibit communication between surrogate decisionmakers and a patient's clinical team, and make it difficult to establish the goals of care. The authors examine the relationship between health and well-being as it pertains to patients with prolonged DOC. They argue that changes in awareness or other function should not be equated to changes in well-being, in the absence of a clear understanding of the constituents of well-being for that particular patient. The authors further maintain that a comprehensive conception of recovery for patients with prolonged DOC should incorporate aspects of both experienced well-being and evaluative well-being.<p /> <p>Language: en</p>",
language="en",
issn="0963-1801",
doi="10.1017/S0963180121000086",
url="http://dx.doi.org/10.1017/S0963180121000086"
}