@article{ref1,
title="Lived experiences of caregivers and survivors of paediatric spinal cord injury: a scoping review of qualitative studies",
journal="Journal of spinal cord medicine",
year="2023",
author="Saxena, Akanksha and Samuel, Asir John and Singh, Manjeet",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="CONTEXT: Paediatric Spinal Cord Injury (SCI) has an impact on a child's dynamic development, disrupting their participation in school, community, and social relationships while simultaneously causing repercussions on their caregiver's life. The rare nature of paediatric SCI calls for a detailed inspection of the literature from the perspective of children and their caregivers. <br><br>OBJECTIVE: This scoping review of qualitative research determines the extent of literature from perspective of caregivers and individuals with paediatric SCI. <br><br>METHODS: 9351 full-text published articles were identified from CINAHL, Ovid, PubMed, and Scopus between 2001 and 2021. After duplicate deletion, 8354 articles were left, and 103 full-text articles were assessed for their eligibility. Finally, eight articles were assessed for their relevance. Key themes that emerged from the data were summarized, compared, and synthesized. <br><br>RESULTS: Six studies were from the perspectives of individuals with SCI and two from caregiver's perspective. Three major themes were identified from caregivers' opinion studies: &quot;Obstacles to community participation&quot;; &quot;Unmet needs related to a child with SCI&quot;; and &quot;Radiating effect on caregivers' lives&quot;; whereas five were obtained from individuals with paediatric SCI opinion studies: &quot;Adjusting to life with SCI&quot;; &quot;Hardships & hardiness&quot;; &quot;Peers & family/emotional support&quot;; &quot;Perception of self & body-image post injury&quot;; and &quot;Transitioning into post-traumatic life&quot;. <br><br>CONCLUSION: There is a need for more specialized rehabilitation centers and an accessible environment in public spaces. Also, the review sheds some light on the discriminatory attitude of society as a whole, which can be improved by providing proper knowledge and awareness of SCI.<p /> <p>Language: en</p>",
language="en",
issn="1079-0268",
doi="10.1080/10790268.2022.2153218",
url="http://dx.doi.org/10.1080/10790268.2022.2153218"
}