@article{ref1,
title="What is the pathway to the best model of care for traumatic spinal cord injury? Evidence-based guidance",
journal="Topics in spinal cord injury rehabilitation",
year="2023",
author="Wiest, Matheus Joner and Gargaro, Judith and Bayley, Mark T.",
volume="29",
number="Suppl",
pages="103-111",
abstract="INTRODUCTION: People with traumatic spinal cord injury (tSCI) experience lifelong physical and emotional health impacts, needing specialized care that is complex to navigate. The non-standardized care pathways used by different jurisdictions to address these needs lead to care inequities and poor health outcomes. <br><br>PURPOSE: To develop an evidence-based integrated tSCI Care Pathway, from time of injury to life in the community. <br><br>METHODS AND ANALYSIS: Eighty key partners engaged in planning, providing, and receiving tSCI care (1) identified existing guidelines, pathways, and care models; (2) created the tSCI Care Pathway with key elements or building blocks (&quot;the what&quot;), not specific recommendations (&quot;the how&quot;) for each care stage (Acute, Rehabilitation, and Community), with elements highlighting the role of primary care and equity considerations on the pathway; (3) identified regional gaps in the tSCI Pathway and prioritized them for implementation; and (4) developed quality indicators. OUTCOMES: The tSCI Pathway was drafted in overarching and detailed formats. For Acute Care, building blocks focused on appropriate assessment, initial management, and transition planning; for Rehabilitation, building blocks focused on access to specialized rehabilitation and assessment and planning of community needs; for Community, building blocks focused on follow-up, mechanisms for re-access, and holistic support for persons and families; and for equity considerations, building blocks focused on those at-risk or requiring complex supports. Team-based primary care and navigation supports were seen as crucial to reduce inequities. <br><br>CONCLUSION: This is the first comprehensive care pathway for tSCI. The Pathway is grounded in person-centred care, integrated care and services, and up-to-date clinical practice guidelines. The tSCI Care Pathway is flexible to regional realities and individual needs to ensure equitable care for all.<p /> <p>Language: en</p>",
language="en",
issn="1082-0744",
doi="10.46292/sci23-00059S",
url="http://dx.doi.org/10.46292/sci23-00059S"
}