@article{ref1,
title="In their own words: fears expressed by people with Parkinson's disease in an online symptom database",
journal="Journal of Parkinson's disease",
year="2024",
author="Mantri, Sneha and Purks, Jennifer L. and Kinel, Daniel and Arbatti, Lakshmi and Hosamath, Abhishek and Allen, Allison and Amara, Amy and Anderson, Karen and Chahine, Lana M. and Eberly, Shirley and Mathur, Soania and Standaert, David and Oakes, David and Weintraub, Daniel and Shoulson, Ira and Marras, Connie",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five &quot;most bothersome problems,&quot; we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.<p /> <p>Language: en</p>",
language="en",
issn="1877-7171",
doi="10.3233/JPD-230305",
url="http://dx.doi.org/10.3233/JPD-230305"
}