%0 Journal Article
%T Measuring the impact of burn scarring on health-related quality of life: development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults
%J Burns: journal of the International Society for Burn Injuries
%D 2015
%A Tyack, Zephanie
%A Ziviani, Jenny
%A Kimble, Roy
%A Plaza, Anita
%A Jones, Amber
%A Cuttle, Leila
%A Simons, Megan
%V 41
%N 7
%P 1405-1419
%X INTRODUCTION: No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults. <br><br>METHOD: Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP). <br><br>RESULTS: Participants comprised Australian adults (n=23) and children (n=19) with burn scarring; caregivers of children with burn scarring (n=28); and international scar management experts (n=14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors. <br><br>CONCLUSION: The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway.<p /> <p>Language: en</p>
%G en
%I Elsevier Publishing
%@ 0305-4179
%U http://dx.doi.org/10.1016/j.burns.2015.05.021