%0 Journal Article
%T Racial differences in data quality and completeness: Spinal Cord Injury Model Systems' experiences
%J Topics in spinal cord injury rehabilitation
%D 2018
%A Chen, Yuying
%A Lin, Hui-Yi
%A Tseng, Tung-Sung
%A Wen, Huacong
%A Devivo, Michael J.
%V 24
%N 2
%P 110-120
%X <b>Background:</b> Among people with spinal cord injury (SCI), minorities experience a disproportionately higher burden of diseases. Knowledge of data quality by race/ethnicity will help better design racial health disparity research and understand potential errors/biases. <b>Objective:</b> To investigate racial/ethnic differences in response completeness in a longitudinal SCI database. <b>Methods:</b> This study included 7,507 participants (5,483 non-Hispanic whites, 1,414 non-Hispanic blacks, and 610 Hispanics) enrolled in the National SCI Database who returned for follow-up between 2001 and 2006 and were aged ≥18 years at follow-up. Missing data were defined as any missing, unknown, or refusal response to interview items. <b>Results:</b> The overall missing rate was 29.7%, 9.5%, 9.7%, 10.7%, 12.0%, and 9.8% for the Craig Handicap Assessment and Reporting Technique-Short Form (CHART) economic self-sufficiency subscale, CAGE questionnaire, drug use, Diener's Satisfaction with Life Scale, Patient Health Questionnaire, and pain severity, respectively. The missing rate for the CHART measure was significantly higher among non-Hispanic blacks and Hispanics than among non-Hispanic whites, after controlling for demographics, injury factors, mode of data collection, and study sites. The missing data in the other outcome measures examined were also significantly higher among non-Hispanic blacks than among non-Hispanic whites but were not significantly different between Hispanics and non-Hispanic whites. <b>Conclusion:</b> Our study highlights the importance of research methodology designed to improve non-response or response incompleteness, particularly in non-Hispanic blacks, as we move to reduce racial/ethnic disparities and strive to explain how and why disparities occur in the SCI population.<p /> <p>Language: en</p>
%G en
%I Thomas Land Publishers
%@ 1082-0744
%U http://dx.doi.org/10.1310/sci2402-110