%0 Journal Article
%T The information gap for children and young people with acquired brain injury
%J Developmental neurorehabilitation
%D 2019
%A Dunford, Carolyn
%A Cobbold, Clair
%A Ray, Ian
%A Wales, Lorna
%V ePub
%N ePub
%P 1-8
%X STATEMENT OF PURPOSE: This study explored the information requirements of children/youth with an acquired brain injury.
METHODS: An online survey (n = 16), focus group (n = 5) and in-depth semi-structured interviews (n = 3) elicited the views of 24 children/youth with ABI. A priori thematic coding was used to analyze the data.
RESULTS: Five themes emerged: stage and age, school, friendship and peers, delivery methods and information content. The desired information changes over time depending on age and time since the injury. Children/youth want their friends and teachers to access information on brain injury. Children/youth want information delivered through a range of channels, including videos (featuring genuine case studies), apps and board games. Children/youth wanted information specific to their injury, information on brain injury more generally, and practical strategies for overcoming problems.
CONCLUSIONS: Children/youth with ABI were able to express views about their information needs, which change over time and include a range of channels.
Language: en
%G en %I Informa - Taylor and Francis Group %@ 1751-8423 %U http://dx.doi.org/10.1080/17518423.2018.1564394