TY - JOUR PY - 2012// TI - Epilepsy-associated stigma in Bolivia: A community-based study among the Guarani population: An International League Against Epilepsy/International Bureau for Epilepsy/World Health Organization Global Campaign Against Epilepsy Regional Project JO - Epilepsy and behavior A1 - Bruno, Elisa A1 - Bartoloni, Alessandro A1 - Sofia, Vito A1 - Rafael, Florentina A1 - Magnelli, Donata A1 - Padilla, Sandra A1 - Quattrocchi, Graziella A1 - Bartalesi, Filippo A1 - Segundo, Higinio A1 - Zappia, Mario A1 - Preux, Pierre-Marie A1 - Nicoletti, Alessandra SP - 131 EP - 136 VL - 25 IS - 1 N2 - Epilepsy is associated with a significant burden of social stigma that appears to be influenced by psychosocial and cultural factors. Stigma has a negative effect on the management of people with epilepsy (PWE), representing one of the major factors that contribute to the burden of epilepsy. To assess stigma perception among the Guarani population, one hundred thirty-two people living in GuaranĂ­ communities in Bolivia were invited to complete the Stigma Scale of Epilepsy questionnaire. The main determinants of stigma identified were: the fear linked to loss of control, the feelings of sadness and pity toward PWE, the difficulties faced by PWE in the professional and relationship fields, the level of education and type of seizure. Our study pointed out that, in this population, PWE face difficulties in everyday life because of epilepsy-associated stigma and the results attest to the importance of promoting community-based educational programs aimed at reducing the stigmatization process.

Language: en

LA - en SN - 1525-5050 UR - http://dx.doi.org/10.1016/j.yebeh.2012.07.011 ID - ref1 ER -