TY  - JOUR
PY  - 2014//
TI  - Improving the consent process for neuroepidemiologic research in resource-poor settings
JO  - Neurology
A1  - Meta, Judith
A1  - Nasuwa, Fortunata
A1  - Mwendo, Emanuel
A1  - Reyburn, Hugh
A1  - Bower, James H.
SP  - 895
EP  - 897
VL  - 82
IS  - 10
N2  - Participation rates in epidemiologic studies in African communities are historically high. We recently performed a pilot prevalence study for neurologic morbidity in Mungushi, Tanzania, where the participation rate was 645/657 subjects (98.2%).(1) We questioned whether this high rate was due to a sincere motivation to participate or a fear of refusal of participation. As Western investigators are increasingly performing neuroepidemiologic work in Africa, it is imperative to distinguish between the 2 explanations. Investigators need to tailor the consent process to the local community's needs, and be sensitive to the motivation of the participants whose culture may differ from their own.<p />  <p>Language: en</p>
LA  - en
SN  - 0028-3878
UR  - http://dx.doi.org/10.1212/WNL.0000000000000184
ID  - ref1
ER  -