TY  - JOUR
PY  - 2016//
TI  - Quality of life after brain injury (QOLIBRI): Italian validation of the proxy version
JO  - Internal and emergency medicine
A1  - Formisano, Rita
A1  - Silvestro, Daniela
A1  - Azicnuda, Eva
A1  - Longo, Eloise
A1  - Barba, Carmen
A1  - Rigon, Jessica
A1  - D'Ippolito, Mariagrazia
A1  - Giustini, Marco
A1  - Bivona, Umberto
SP  - 187
EP  - 198
VL  - 12
IS  - 2
N2  - To validate the proxy version of the Quality of Life after Brain Injury (QOLIBRI) questionnaire to utilize caregivers for comparison and to evaluate the correspondence between patients' self-perceived and caregivers' perception of patients' Health-Related Quality of Life (HRQoL). Ninety-two patients with severe TBI and their main caregivers were enrolled. Patients' and caregivers' HRQoL was assessed by the Patient-QOLIBRI (Pt-QOLIBRI) and the Proxy-QOLIBRI (Pro-QOLIBRI), respectively. The Pro-QOLIBRI is a modified version of the QOLIBRI to investigate caregivers' perception of patients' HRQoL (Pro-QOLIBRIpatient-centered), and their degree of satisfaction and botheredness (Pro-QOLIBRIcaregiver centered). The patients' disability and their social reintegration was investigated by means of Glasgow Outcome Scale Extended and Community Integration Questionnaire. Pro-QOLIBRI has good internal consistency and homogeneity. There was also positive correlation between the level of satisfaction measured by Pro-QOLIBRI but not by Pt-QOLIBRI, and the disability severity and social integration of the patients. The comparison between the Pt-QOLIBRI and Pro-QOLIBRI confirmed the usefulness of the Pro-QOLIBRI, especially the caregiver-centered version, to predict the social reintegration of survivors. To our knowledge this is the first study that correlates the HRQoL of survivors, as self-perceived and as perceived by the caregivers with social reintegration.<p />  <p>Language: en</p>
LA  - en
SN  - 1828-0447
UR  - http://dx.doi.org/10.1007/s11739-016-1536-1
ID  - ref1
ER  -