TY  - JOUR
PY  - 2016//
TI  - Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: a Norwegian longitudinal study
JO  - NeuroRehabilitation
A1  - Manskow, Unn Sollid
A1  - Friborg, Oddgeir
A1  - Røe, Cecilie
A1  - Braine, Mary E.
A1  - Damsgård, Elin
A1  - Anke, Audny
SP  - 211
EP  - 222
VL  - 40
IS  - 2
N2  - OBJECTIVE: To assess burden and life satisfaction in family members of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine if change in burden can be predicted by family member and patient demographics, patient's functional status, family members social network or level of burden at 1 year. <br><br>METHODS: Prospective national multicenter study. Self-report from family members, patient data collected from a national cohort study on patients with sTBI. 80 family members participated. MAIN OUTCOME MEASURE: The Caregiver Burden Scale (CBS), life satisfaction. <br><br>RESULTS: Total burden increased between years 1 and 2 post-injury (P = 0.04). Thirty percent of the family members reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR = 4.35, P < 0.05). Life Satisfaction was lower at the 2 year follow-up than at 1 year (p = 0.03). <br><br>CONCLUSIONS: The results demonstrate a need for long-term follow-up of patients and family members that focuses on professional support to relieve burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.<p />  <p>Language: en</p>
LA  - en
SN  - 1053-8135
UR  - http://dx.doi.org/10.3233/NRE-161406
ID  - ref1
ER  -