TY - JOUR PY - 2017// TI - Health research ethics: between ethics codes and culture JO - Journal of empirical research on human research ethics A1 - Gheondea-Eladi, Alexandra SP - 246 EP - 260 VL - 12 IS - 4 N2 - This article is meant to describe and analyze some of the ethical difficulties encountered in a pilot research on treatment decisions of patients with chronic viral hepatitis C infection in Romania. It departs from an overview of the main ethics codes, and it shows that social health research on patients falls in between institutional codes of ethics. Furthermore, the article moves on to analyze so-called "important moments" of empirical research, such as the implementation of the ethical protocol, dealing with informal payments and with information on shady actions, as well as requests of information from interviewed patients and deciding when and if to breach confidentiality. In an attempt to evaluate the ad hoc solutions found in the field, the concluding remarks discuss these issues at the threshold of theory and practice.
Language: en
LA - en SN - 1556-2646 UR - http://dx.doi.org/10.1177/1556264617717162 ID - ref1 ER -