TY  - JOUR
PY  - 2017//
TI  - Feasibility and data quality of the National Spinal Cord Injury Registry of Iran (NSCIR-IR): a pilot study
JO  - Archives of Iranian medicine
A1  - Naghdi, Khatereh
A1  - Azadmanjir, Zahra
A1  - Saadat, Soheil
A1  - Abedi, Aidin
A1  - Koohi Habibi, Sahar
A1  - Derakhshan, Pegah
A1  - Safdarian, Mahdi
A1  - Abdollah Zadegan, Shayan
A1  - Amirjamshidi, Abbas
A1  - Sharif-Alhoseini, Mahdi
A1  - Arab Kheradmand, Jalil
A1  - Mohammadzadeh, Mahdi
A1  - Zendehdel, Kazem
A1  - Khazaeipour, Zahra
A1  - Hashemi, Seyed Mahmood Ramak
A1  - Saberi, Hooshang
A1  - Karimi Yarandi, Kourosh
A1  - Ketabchi, Seyed Ebrahim
A1  - Yousefzadeh-Chabok, Shahrokh
A1  - Heidari, Hamid
A1  - Sotodeh, Arezo
A1  - Pestei, Khalil
A1  - Ghodsi, Zahra
A1  - Sadeghian, Farideh
A1  - Noonan, Vanessa
A1  - Benzel, Edward C.
A1  - Oreilly, Gerard
A1  - Chapman, Jens
A1  - Hagen, Ellen Merete
A1  - Fehlings, Michael G.
A1  - Vaccaro, Alexander R.
A1  - Faghih Jooybari, Morteza
A1  - Zarei, Mohammad Reza
A1  - Zafarghandi, Mohammad Reza
A1  - Salamati, Payman
A1  - Nezareh, Saeed
A1  - Khormali, Moein
A1  - Sadeghi-Naini, Mohsen
A1  - Jazayeri, Seyed Behzad
A1  - Aarabi, Bizhan
A1  - Rahimi-Movaghar, Vafa
SP  - 494
EP  - 502
VL  - 20
IS  - 8
N2  - BACKGROUND: Spinal cord injury (SCI) is one of the most disabling consequences of trauma with unparalleled economic, social, and personal burden. Any attempt aimed at improving quality of care should be based on comprehensive and reliable data. This pilot investigation studied the feasibility of implementing the National Spinal Cord and Column Injury Registry of Iran (NSCIR-IR) and scrutinized the quality of the registered data. <br><br>METHODS: From October 2015 to May 2016, over an 8-month period, 65 eligible trauma patients who were admitted to hospitals in three academic centers in mainland Iran were included in this pilot study. Certified registered nurses and neurosurgeons were in charge of data collection, quality verification, and registration. <br><br>RESULTS: Sixty-five patients with vertebral column fracture dislocations were registered in the study, of whom 14 (21.5%) patients had evidence of SCI. Mechanisms of injury included mechanical falls in 30 patients (46.2%) and motor vehicle accidents in 29 (44.6%). The case identification rate i.e. clinical and radiographic confirmation of spine and SCI, ranged from 10.0% to 88.9% in different registry centers. The completion rate of all data items was 100%, except for five data elements in patients who could not provide clinical information because of their medical status. Consistency i.e. identification of the same elements by all the registrars, was 100% and accuracy of identification of the same pathology ranged from 66.6% to 100%. <br><br>CONCLUSIONS: Our pilot study showed both the feasibility and acceptable data quality of the NSCIR-IR. However, effective and successful implementation of NSCIR-IR data use requires some modifications such as presence of a dedicated registrar in each center, verification of data by a neurosurgeon, and continuous assessment of patients' neurological status and complications.<p />  <p>Language: en</p>
LA  - en
SN  - 1029-2977
UR  - http://dx.doi.org/
ID  - ref1
ER  -