TY - JOUR PY - 2019// TI - 'I am free in my wheelchair but pain does have a say in it though': the meaning and experience of quality of life when living with paraplegia and chronic pain JO - Journal of health psychology A1 - Hughes, Melanie A1 - Burton, Amy E. A1 - Dempsey, Robert C. SP - 1356 EP - 1367 VL - 24 IS - 10 N2 - This study investigated how wheelchair-using individuals with paraplegia and chronic pain make sense of the factors associated with quality of life based on interviews using photo-elicitation and interpretative phenomenological analysis. Three superordinate themes emerged in the analysis: experiencing quality of life through the perception of self and identity, interpersonal relationships as facilitators and barriers to quality of life and life in a wheelchair: pain experience and management. Quality of life for those living with paraplegia and chronic pain is experienced as a complex interaction across several life domains. The use of photographs may improve the communication of pain-related experiences and understanding by healthcare staff.
Language: en
LA - en SN - 1359-1053 UR - http://dx.doi.org/10.1177/1359105317750254 ID - ref1 ER -