TY - JOUR PY - 2017// TI - Common data elements for concussion in tertiary care: phase one in Ontario JO - Canadian journal of neurological sciences A1 - Hunt, Cindy A1 - Michalak, Alicja A1 - Ouchterlony, Donna A1 - Marshall, Shawn A1 - Masanic, Cheryl A1 - Vaidyanath, Chantal A1 - Bhalerao, Shree A1 - Cusimano, Michael D. A1 - Quon, Deanna A1 - Fischer, Lisa K. A1 - Baker, Andrew SP - 676 EP - 683 VL - 44 IS - 6 N2 - BACKGROUND: Standardized data collection for traumatic brain injury (TBI) (including concussion) using common data elements (CDEs) has strengthened clinical care and research capacity in the United States and Europe. Currently, Ontario healthcare providers do not collect uniform data on adult patients diagnosed with concussion.

OBJECTIVE: The Ontario Concussion Care Strategy (OCCS) is a collaborative network of multidisciplinary healthcare providers, brain injury advocacy groups, patient representatives, and researchers with a shared vision to improve concussion care across the province, starting with the collection of standardized data.

METHODS: The International Framework of Functioning Disability and Health was selected as the conceptual framework to inform the selection of CDEs. The CDEs recommended by the OCCS were identified using key literature, including the National Institute of Neurological Disorders and Stroke-Zurich Consensus Statements for concussion in sport and the Ontario Neurotrauma Foundation Concussion/mTBI clinical guidelines.

RESULTS: The OCCS has recommended and piloted CDEs for Ontario that are readily available at no cost, clinically relevant, patient friendly, easy to interpret, and recognized by the international scientific community.

CONCLUSIONS: The implementation of CDEs can help to shift Ontario toward internationally recognized standard data collection, and in so doing yield a more comprehensive evidence-based approach to care while also supporting rigorous research.

Language: en

LA - en SN - 0317-1671 UR - http://dx.doi.org/10.1017/cjn.2017.222 ID - ref1 ER -