TY - JOUR PY - 2016// TI - Younger onset dementia: a review of the literature to inform service development JO - American journal of Alzheimer's disease and other dementias A1 - Sansoni, Janet A1 - Duncan, Cathy A1 - Grootemaat, Pamela A1 - Capell, Jacquelin A1 - Samsa, Peter A1 - Westera, Anita SP - 693 EP - 705 VL - 31 IS - 8 N2 - This literature review focused on the experience, care, and service requirements of people with younger onset dementia. Systematic searches of 10 relevant bibliographic databases and a rigorous examination of the literature from nonacademic sources were undertaken. Searches identified 304 articles assessed for relevance and level of evidence, of which 74% were academic literature. The review identified the need for (1) more timely and accurate diagnosis and increased support immediately following diagnosis; (2) more individually tailored services addressing life cycle issues; (3) examination of the service needs of those living alone; (4) more systematic evaluation of services and programs; (5) further examination of service utilization, costs of illness, and cost effectiveness; and (6) current Australian clinical surveys to estimate prevalence, incidence, and survival rates. Although previous research has identified important service issues, there is a need for further studies with stronger research designs and consideration of the control of potentially confounding factors.

Language: en

LA - en SN - 1533-3175 UR - http://dx.doi.org/10.1177/1533317515619481 ID - ref1 ER -