TY  - JOUR
PY  - 2023//
TI  - Health-related quality of life after pediatric traumatic brain injury: a quantitative comparison between children's and parents' perspectives of the QOLIBRI-KID/ADO questionnaire
JO  - Journal of clinical medicine
A1  - Cunitz, Katrin
A1  - Holloway, Ivana
A1  - Harzendorf, Anne
A1  - Greving, Sven
A1  - Zeldovich, Marina
A1  - Krenz, Ugne
A1  - Timmermann, Dagmar
A1  - Koerte, Inga K.
A1  - Bonfert, Michaela Veronika
A1  - Berweck, Steffen
A1  - Kieslich, Matthias
A1  - Brockmann, Knut
A1  - Roediger, Maike
A1  - Buchheim, Anna
A1  - Andelic, Nada
A1  - Lendt, Michael
A1  - Staebler, Michael
A1  - Muehlan, Holger
A1  - von Steinbuechel, Nicole
SP  - e7439
EP  - e7439
VL  - 12
IS  - 23
N2  - Pediatric health-related quality of life (HRQoL) as a measure of subjective wellbeing and functioning has received increasing attention over the past decade. HRQoL in children and adolescents following pediatric traumatic brain injury (pTBI) has been poorly studied, and performing adequate measurements in this population is challenging. This study compares child/adolescent and parent reports of HRQoL following pTBI using the newly developed Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) questionnaire. Three hundred dyads of 8-17-year-old children/adolescents and their parents were included in the study. The parent-child agreement, estimated using intraclass correlation coefficients and Cohen's κ, displayed poor to moderate concordance. Approximately two-fifths of parents (39.3%) tended to report lower HRQoL for their children/adolescents on the total QOLIBRI-KID/ADO score. At the same time, about one-fifth (21.3%) reported higher HRQoL Total scores for their children/adolescents. The best agreement for parents rating adolescents (aged 13-17 years) was found in terms of the Total score and the Cognition and Self scale scores. To date, parent-reported HRQoL has been the preferred choice in pediatric research after TBI. However, with a parent-child disagreement of approximately 60%, our results highlight the importance of considering self-reports for children/adolescents capable of answering or completing the HRQoL measures.<p />  <p>Language: en</p>
LA  - en
SN  - 2077-0383
UR  - http://dx.doi.org/10.3390/jcm12237439
ID  - ref1
ER  -