TY  - JOUR
PY  - 2024//
TI  - In their own words: fears expressed by people with Parkinson's disease in an online symptom database
JO  - Journal of Parkinson's disease
A1  - Mantri, Sneha
A1  - Purks, Jennifer L.
A1  - Kinel, Daniel
A1  - Arbatti, Lakshmi
A1  - Hosamath, Abhishek
A1  - Allen, Allison
A1  - Amara, Amy
A1  - Anderson, Karen
A1  - Chahine, Lana M.
A1  - Eberly, Shirley
A1  - Mathur, Soania
A1  - Standaert, David
A1  - Oakes, David
A1  - Weintraub, Daniel
A1  - Shoulson, Ira
A1  - Marras, Connie
SP  - ePub
EP  - ePub
VL  - ePub
IS  - ePub
N2  - Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.<p />  <p>Language: en</p>
LA  - en
SN  - 1877-7171
UR  - http://dx.doi.org/10.3233/JPD-230305
ID  - ref1
ER  -