TY  - JOUR
PY  - 2010//
TI  - The subjective experience of participation in schizophrenia research: a practical and ethical issue
JO  - Journal of nervous and mental disease
A1  - Taylor, Peter James
A1  - Awenat, Yvonne
A1  - Gooding, Patricia
A1  - Johnson, Judith
A1  - Pratt, Daniel
A1  - Wood, Alex
A1  - Tarrier, Nicholas
SP  - 343
EP  - 348
VL  - 198
IS  - 5
N2  - Mental health research may pose a risk to those who participate in it, especially for potentially vulnerable groups such as those diagnosed with schizophrenia. The current study aimed to investigate the subjective experience of research participation in this group. Seventy-nine individuals with diagnoses of schizophrenia spectrum disorders who had taken part in research looking at suicide were asked to provide feedback about their experiences. Responses were analyzed using qualitative and quantitative methods. <br><br>RESULTS indicate that negative feedback concerning participation was rare, occurring in 2.5% to 15.2% of responses. Positive feedback was more frequent, occurring in 45.6% to 60.8% of responses. Qualitative thematic analysis identified 5 key themes in participants' responses: Altruism, Value of being involved in research, Therapeutic effect, Enjoyable experience and Negative experiences. The results support the view that mental health research in this group can be ethically viable.<p /> <p>Language: en</p>
LA  - en
SN  - 0022-3018
UR  - http://dx.doi.org/10.1097/NMD.0b013e3181da8545
ID  - ref1
ER  -