TY - JOUR PY - 2024// TI - Gross motor family report: refinement and evaluation of psychometric properties JO - Developmental medicine and child neurology A1 - Magalhães, Elton D. D. A1 - Rosenbaum, Peter A1 - Wright, Marilyn A1 - Wright, F. Virginia A1 - Pritchard, Lesley A1 - Ayupe, Kennea M. A. A1 - de Campos, Ana Carolina A1 - Morais, Rosane S. A1 - Leite, Hercules R. A1 - Chagas, Paula S. C. SP - ePub EP - ePub VL - ePub IS - ePub N2 - AIM: To refine the Gross Motor Family Report (GM-FR) using parents' input and to evaluate its psychometric properties.

METHOD: In this measurement study, 12 parents of children and adolescents with cerebral palsy (CP), aged 2 to 18 years, classified in all levels of the Gross Motor Function Classification System (GMFCS), were interviewed about their experience completing the GM-FR (content validity). Parents' feedback was used to refine the measure which was then completed by 146 families to evaluate internal consistency, and discriminative and concurrent validity. Forty-six parents completed the GM-FR again, 7 to 30 days later, to evaluate test-retest reliability.

RESULTS: GM-FR scoring, pictures, descriptions, and the total number of items were revised based on parents' feedback. The GM-FR version 2.0 demonstrated high internal consistency (Cronbach's α = 0.99), no floor/ceiling effects, and excellent test-retest reliability (intraclass correlation coefficient = 0.99). GM-FR scores discriminated between GMFCS levels (p < 0.05) and were strongly negatively correlated with GMFCS level (r = -0.92; p < 0.001). GM-FR scores correlated positively and strongly with the Gross Motor Function Measure-66 (r = 0.94; p < 0.001) and the Pediatric Evaluation of Disability Inventory - Computer Adaptive Test mobility domain (r = 0.93; p < 0.001).

INTERPRETATION: Active participation of families in the GM-FR's development facilitated creation of a family-friendly instrument. This study provides strong evidence of reliability and validity to support GM-FR use in clinical practice and research for assessing gross motor performance of children and adolescents with CP.

Language: en

LA - en SN - 0012-1622 UR - http://dx.doi.org/10.1111/dmcn.16042 ID - ref1 ER -