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Journal Article

Citation

Murphy AN, Scotellaro M, Carrol M, Risser HJ. Disabil. Health J. 2023; ePub(ePub): ePub.

Copyright

(Copyright © 2023, Elsevier Publishing)

DOI

10.1016/j.dhjo.2023.101537

PMID

unavailable

Abstract

Background
Children and youth with special health care needs (CYSHCN) are at an increased risk for abuse and neglect, and they experience worse outcomes during and after child protective services involvement, as compared to typically developing peers. Identifying and monitoring these vulnerable youth is essential for reducing disparities and optimizing service delivery. However, many states, including Illinois, lack systems for efficient identification and monitoring.
Objective
(1) To examine existing Illinois Department of Children and Family Services (ILDCFS) data systems to determine if a source exists that would allow for identification and monitoring of CYSHCN; and (2) To understand ILDCFS personnel's experience with identifying and monitoring CYSHCN.
Methods
First, relevant ILDCFS data sources were identified, pulled, and examined for completeness. Second, ILDCFS personnel completed a mixed-methods survey assessing how they identified and monitored CYSHCN as well as what barriers they experienced in conducting these activities. Conceptual content analysis was utilized to obtain counts of different methods used to track and monitor youth as well as to identify barriers to these processes.
Results
Six data sources were identified as being relevant through ILDCFS' data systems, but none were complete enough for effectively tracking and identifying CYSHCN. Survey responses indicated no standardized, systemic process for identifying and monitoring CYSHCN, with many personnel relying reports from other involved parties.
Conclusions
In order to identify CYSHCN and to monitor well-being, a standardized process within ILDCFS systems is needed to provide complete, accurate and timely data for CYSHCN, allowing for both system-wide and individual-level monitoring.


Language: en

Keywords

Child Welfare; Disabilities; Identification; Monitoring; Patient Identification Systems; Special Health Care Needs

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