Citation

Doser K, Norup A. Brain Inj. 2014; 28(10): 1230-1237.

Affiliation

Research Unit on Brain Injury rehabilitation, Copenhagen (RUBRIC), Department of Neurorehabilitation, Traumatic Brain Injury Unit, Copenhagen University Hospital , Glostrup , Denmark and.

Copyright

(Copyright © 2014, Informa - Taylor and Francis Group)

DOI

10.3109/02699052.2014.915985

PMID

24884472

Abstract

OBJECTIVE: This preliminary study aimed at investigating (1) changes in the status of family members between time of injury and follow-up in the chronic phase and (2) the most important needs within the family in the chronic phase and whether the needs were perceived as met. Participants: The sample comprised 42 relatives (76% female, mean age = 53 years) of patients with severe brain injury, who had received intensive sub-acute rehabilitation. The relatives were contacted in the chronic phase after brain injury. Outcome measure: A set of questions about demographics and time spent caregiving for the patient was completed. The relatives completed the revised version of the Family Needs Questionnaire, a questionnaire consisting of 37 items related to different needs following brain injury.

RESULTS: Significant changes in status were found in employment (z = -3.464, p = 0.001) and co-habitation (z = -3.317, p = 0.001). The sub-scale 'Health Information' (Mean = 3.50, SD = 0.73) had the highest mean importance rating, whereas the sub-scale 'Emotional support' (Mean = 3.07, SD = 0.79) had the lowest. When combining importance and met ratings, it was found that the five most important needs were only met in 41-50% of the total sample.

CONCLUSION: Occupational and co-habitation status of the relatives was significantly affected by brain injury. A high number of relatives reported family needs not satisfied in the chronic phase. This requires an interventional approach for families to get these needs fulfilled individually, even after rehabilitation.

Language: en