Citation

Noonan VK, Chan E, Bassett-Spiers K, Berlowitz DJ, Biering-Sørensen F, Charlifue S, Graco M, Hayes KC, Horsewell J, Joshi P, Markelis D, Smith V, Waheed Z, Brown DJ. J. Neurotrauma 2018; 35(3): 478-485.

Affiliation

Spinal Research Institute, Melbourne, Australia ; doug.brown@thesri.org.

Copyright

(Copyright © 2018, Mary Ann Liebert Publishers)

DOI

10.1089/neu.2017.5036

PMID

28728503

Abstract

International collaboration in spinal cord injury (SCI) clinical research is necessary to overcome the challenges often encountered by clinicians and researchers including participant recruitment, high cost and the need for highly specialized expertise. However, international collaboration poses its own obstacles. The objective of this study was to conduct an international online survey to assess barriers and facilitators to international SCI clinical research, potential initiatives to facilitate future collaborations and the use of SCI-specific data sets and standards.

RESULTS were analyzed using descriptive statistics. 213 out of 364 total respondents fully completed the survey with the majority of these participants based in North America (38%), Asia (22%), Europe (18%) and Oceania (16%). Over half had >10 years of experience in SCI research or clinical practice (57%) and 60% had previous experience with international collaborations. Funding was identified as a top barrier (82%), facilitator (93%) and proposed future initiative (97%). Communication and technology were also identified as strong facilitators and proposed future initiatives. The International Standards for Neurological Classification of SCI were used by 69%, the International Standards to document remaining Autonomic Function after SCI by 13%, and the International SCI Data Sets by 45% of participants. As the need for international collaborations in SCI research increases, it is important to identify how clinicians and researchers can be supported by SCI consumer and professional organizations, funders and networks. Furthermore, unique solutions to overcome modifiable barriers and creation of new facilitators are also needed.

Language: en

Keywords

CLINICAL TRIAL; TRAUMATIC SPINAL CORD INJURY; spinal cord injury